Week 6:Essay Rough Draft

Although kids who have Congental Insenitivity to Pain with Anhidrosis feel no pain and they think everything is okay, the disease causes great suffering for the parents of inflicted children because of the horrible visits to the hospital their kids have to endure everyday, the thought of their child haveing internal damage and they don't even know it, and because of the things they won't be able to see their kids do as a child.
Congental Insensitivity to Pain with Anhidrosis is also known as CIPA by doctors and the families who have someone with it. CIPA is a very rare genetic disorder in which the person who has it feels no pain at all. Oh how the kids would love that, to be able to fall down and not get hurt. Now as a kid I'm pretty sure we all couldn't stand the thought of going to the hospital, and when we found out that we had to go we tried everything in our power to make our parents change their mind but it never worked not one time. And After every visit it always ends in the same way, you get the daiognosis, you get the shot, you feel the pain and aganony.
Now put yourself in your parents shoes, they don't like the fact that we have to go to the doctor, becuase they now as a kid will leave in tears.Because it's nothing they can do about that. But once it's over we don't have to return for awhile, but the families who have kids with CIPA go to the hospital three times as much as the average family. And some of them actually go every day. To get anti-biotics and other things along those lines. The parent has to get up everyday early in the morning and take the child to the hospital just to get them prepaired for another day. Imagine how the parents feel to have to take them turns out of their everyday life to go visit the hospital I would imagine it would get very exausting. The only thing is it has to be done there is no way around it. It's the same as going to the hospital as a healthy child except without the pain and tears and it's eveyday or more often than normal, and everyday it get even more exausting for both the parents and the child.
If a child without CIPA feels severe pain in the abdomin there parents will notice it right away because of the screaming and crying. So what does the parent do, they take them to the hospital to see what is going only to find out that they have a minor case of food poisining. But what about the kids who CIPA they wouldn't be able to feel the pain. They do experience some kind of dis-comfort but the problem with that is that they might think it's normal. They would think it's nothing and wouldn't think to tell you and jus go on about their day,it's like when we begin to get a cold we start sneezing and a running nose and we say "oh just allergies," until a few days later we don't feel like geeting out of bed. That's how they see, they think it's nothing and blow it off. Somw of those paretns fear what they don't know, and the fact that their child could internal damage and don't know it, forces them to live in a world of constant fear. They can have fractured bones and wouldn't be able to tell their parents. sometimes people that can feel pain breaks or fractures bones and don't even know it.
It's because they can't feel pain internally, why they have to have frequent or daily visits to the emergencey room. Also what about the very serious conditions that causes pain first then the fatal effects, later, they might not be able to catch it in time. Also concusions are a problem as well because we can have them and don't know so just picture them.
Remember all the fun things you use to do as a child like, Jump from bed to bed, or climb trees, then you would fall down and get hurt and your paretns brings the alchol that makes it hurt even more, then you would get back up and start it again like you didn't just get hurt. well the parents of the children who have CIPA are less fortunate, they may never get the chance to see their children do those fun things because of a harmless injury that could eventually become seriouse if left untreated.
Some of the oarents that have kids with CIPA allow their children to play and have however they are limited. The victims of CIPA don't sweat so their body can't cool down itself like ours can so heat is dangerous to them, so the kids aren't able to stay outside in the summer for too long. Also if the paretns do let their children play, everytime they are done their whole body has to be checked for cuts and brusis that could get infected leading to serious injury. Some of the parents that have children with CIPA go through with this and just do the daily checks, but others parents just can't handle it and think it's best for their child to stay inside, and so they miss the moments where they get to see their chlid ride a bike and clean their wounds after a fall.
Most of the children if they maje it past the rough childhood don't get to die of old age. It's either a heat stroke because they don't sweat of of something internally that they are unaware of. So feeling pain might b e a good factor in our everyday life, after all how else would we know not to touch the stove.