Week 6 Essay 2 Final Draft

Congental Insensitivity to Pain with Anhidrosis is also known as CIPA by doctors and the families who have someone with the disease. CIPA is a very rare genetic disorder in which the person who has it feels no pain at all. Oh how the kids would love that, to be able to fall down and not get hurt. Now as a kid I'm pretty sure we all couldn't stand the thought of going to the hospital, and when we found out that we had to go we tried everything in our power to make our parents change their mind, but it never worked not one time. And after every visit it always ends in the same way, you get the diagnosis, you get the shot, you feel the pain, and then you get the bad tasting lollipop and go home in pain and agony.
Now put yourself in your parents shoes, they don't like the fact that we have to go to the doctor, because they know as a kid we will leave in tears, and it's nothing they can do about that. But once it's over we don't have to return for awhile, but the families who have kids with CIPA go to the hospital three times as much as the average family. And some of them actually go everyday, to get anti-biotics and other things along those lines. The parent has to get up everyday; early in the morning and take the child to the hospital just to get them prepared for another day. Imagine how the parents feel to have to take turns out of their everyday life to go visit the hospital, I would imagine it would get very exhausting. The only problem is it has to be done, there is no way around it. It's the same as going to the hospital as a healthy child except without the pain and tears, and it's everyday or more often than normal, and everyday it gets even more exhausting for both the parents and the child.
If a child without CIPA feels severe pain in the abdomen their parents will notice it right away because of the screaming and crying. So what does the parent do, they take them to the hospital to see what is going on only to find out that they have a minor case of food poisoning. But what about the kids who have CIPA they wouldn't be able to feel the pain. They do experience some kind of dis-comfort but the problem with that is that they might think it's normal. They would think it's nothing and wouldn't think to tell their parents and just go on about their day, it's like when a healthy person begins to get a cold they start to sneeze and get a running nose but they think it's just allergies, until a few days later they don't feel like getting out of bed. That's how they see it, they think it's nothing and blow it off. Some of those parents fear what they don't know, and the fact that their child could have internal damage and don't know it, it forces them to live in a world of constant fear. They can have fractured bones and wouldn't be able to tell their parents, sometimes people that can feel pain, breaks or fractures bones and don't even know it.
It's because they can't feel pain internally, why they have to have frequent or daily visits to the emergency room. Also what about the very serious conditions or diseases that causes pain first then the fatal effects later, they might not be able to catch it in time. Also concussions are a problem as well because healthy kids can have them and don't know it so just picture the ones with CIPA.
Remember all the fun things you use to do as a child like, jump from bed to bed, or climb trees, then you would fall down and get hurt and your parents would bring the alcohol that makes it hurt even more, then you would get back up and start it again like you didn't just get hurt. Well the parent's of the children who have CIPA are less fortunate, they may never get the chance to see their children do those fun things because of a harmless injury that could eventually become serious if left untreated.
Some of the parents that have kids with CIPA allow their children to play and have fun, however they are limited. The victims of CIPA don't sweat, so their body can't cool itself down like ours can so heat is dangerous to them, so the kids aren't able to stay outside in the summer for too long. Also if the parents do let their children play, every time they are done playing the child's whole body has to be checked for small cuts and bruises that could get infected leading to serious injury. Some of the parents that have children with CIPA go through with this and just do the daily checks, but other parents just can't handle it and think it's best for their child to stay inside, and so they miss the moments where they get to see their child ride a bike and clean their wounds after a fall.
Most of the children if they make it past the rough childhood don't get the chance to die of old age. It's either a heat stroke because they don't sweat or of something internally that they are unaware of. So feeling pain might be a good factor in our everyday life, after all how else would we know not to touch the stove, that's how we learn about pain as a kid through experience.
Although kids who have Congental Insensitivity to Pain with Anhidrosis feel no pain and they think everything is okay, the disease causes great suffering for the parents of inflicted children, because of the horrible visits to the hospital their kids have to endure everyday, the thought of their child having internal damage and they don't even know it, and because of the things they won't be able to see their kids do as a child.